{"id":17788,"date":"2023-01-24T14:47:37","date_gmt":"2023-01-24T19:47:37","guid":{"rendered":"https:\/\/engineering.jhu.edu\/magazine-archive\/?p=17788"},"modified":"2023-02-02T15:49:05","modified_gmt":"2023-02-02T20:49:05","slug":"data-democratizer-2","status":"publish","type":"post","link":"https:\/\/engineering.jhu.edu\/magazine-archive\/2023\/01\/data-democratizer-2\/","title":{"rendered":"Data Democratizer"},"content":{"rendered":"

 <\/p>\n\"Banner\n

With her COVID-19 dashboard that proved critical to mapping the deadly virus’s trajectory, Lauren Gardner went overnight from an unassuming engineer to a global voice championing the value of data science in public health. <\/strong><\/p>\n

Lauren Gardner knows a measure of fame that engineers are rarely afforded. She did not invent a new gadget. She did not found a hot startup. She did not get rich with an IPO. She did it with data.<\/p>\n

Gardner<\/a>, an associate professor of civil and systems engineering<\/a> and director of the Center for Systems Science and Engineering<\/a> at the Whiting School of Engineering, is the primary driver behind the globally recognized COVID-19 dashboard. Throughout 2020, as the worst public health crisis in a century made a relentless march across the world, a minimalist map that began as a pet project between like-minded professor and graduate student, Ensheng Dong, transformed into a dashboard tracking cases, deaths, and, in time, vaccinations worldwide. It became the go-to resource for data scientists, epidemiologists, public health officials, politicians, journalists, and, yes, everyday citizens the world over.<\/p>\n

The dashboard enjoyed a modest start. Gardner introduced it with a simple tweet on January 22, 2020, just two days after the first case of COVID-19 on U.S. soil was announced. Almost from the moment she hit send, Gardner was thrust into a spotlight she never expected or sought.<\/p>\n

\u201cIt was immediate. Within hours, it just blew up,\u201d recalls Gardner, who is the Alton and Sandra Cleveland Professor at the Whiting School. \u201cI had a feeling when we created it that it would grow. What I didn\u2019t know was that what we created would become the tool for the world.\u201d<\/p>\n

The COVID-19 dashboard became the most cited source for information about COVID-19, and Lauren Gardner became its reluctant-but-resolute face. Overnight, she went from an unassuming engineer to a global voice championing the value of data science in public health.<\/p>\n

The world was watching. TIME<\/em> named Gardner to its 2020 list of the world\u2019s 100 most influential people.<\/a> Then, this past fall, Gardner topped it, receiving the Lasker-Bloomberg Public Service Award<\/a> for her work creating the COVID-19 dashboard and curating its underlying database. The Lasker Foundation credits Gardner for creating \u201cthe world\u2019s most influential source for real-time reliable and easily accessible data\u201d about COVID-19\u2019s spread and outcomes.<\/p>\n\"\"\n

For almost 80 years, the Lasker Foundation has recognized individuals and organizations who have improved the public\u2019s understanding of medical research, public health, or health care. The public service award is widely acknowledged as the highest-profile recognition in public health communication. Past winners include Bill Gates and Melinda Gates, Betty Ford, Anthony Fauci, Henry Heimlich, the National Institutes of Health, and M\u00e9decins Sans Fronti\u00e8res (Doctors Without Borders).<\/p>\n

\u201cI am extremely honored to be awarded the Lasker-Bloomberg Public Service Award. It\u2019s been an exceptional experience to play such an integral role in keeping the world informed during a global public health crisis, and perhaps equally important, changing the expectations around public access to data and information,\u201d Gardner says. \u201cI am also excited for the opportunity to highlight the value and impact of quality data science and engineering. These tools, combined with good science communication, are critical for addressing the multitude of problems facing societies\u00a0today, whether that be a public health crisis, climate change, or improving basic access to services in a community. I sincerely hope these tools and skill sets continue to be invested in and integrated into the public sector in the years to come.\u201d<\/p>\n

Engineering Intersections<\/h2>\n

How an engineer with a background in transportation engineering ended up as a leading voice in global public health is a story in and of itself. Gardner counts herself among a growing branch of engineers who use the traditional tools of civil engineering to model the spread of diseases.<\/p>\n

\u201cI began by studying the intersection between human mobility and infectious disease,\u201d Gardner explains. \u201cThe tools behind it all, specifically the mathematical modeling, flows out of engineering.\u201d<\/p>\n

It turns out that the movement of people, data, objects, anything really, between nodes in a network can be adapted to the movement of disease among people and cities. These days, it is not uncommon to find data scientists, like Gardner, from various engineering fields applying similar skills to broad societal concerns, from traffic jams to the opioid epidemic.<\/p>\n

\u201cWe\u2019ve branded ourselves as \u2018systems engineers,\u2019 an interdisciplinary science grounded in data and math models to solve problems,\u201d Gardner says. \u201cThese are interdisciplinary problems, which rely heavily on data and modeling tools, to support evidence-based decision making.\u201d<\/p>\n

\u201cWhen I first saw the dashboard, I was stunned that it was an engineer behind it,\u201d says Beth Blauer, a professor and the associate vice provost for public-sector innovation at Johns Hopkins, who heads the Coronavirus Resource Center<\/a>. \u201cBut, then again, that\u2019s the Hopkins way, finding talent that cuts across the silos of the university. That\u2019s Lauren.\u201d<\/p>\n

The dawning realization that their dashboard was about to explode produced in Gardner\u2019s team a momentary what-havewe- wrought soul searching. At first, Gardner imagined (hoped, really) that some higher-profile organization\u2014the Centers for Disease Control and Prevention, the World Health Organization, or the National Institutes of Health perhaps\u2014might assume the responsibility for the dashboard or offer up its own variation. But that moment never came.<\/p>\n

Gardner and her small team of data scientists would soon face a go\/no-go decision, the answer to which would consume the next three years of their lives.<\/p>\n

\u201cOur first reaction, \u2018We can\u2019t do this,\u2019 evolved into \u2018We have to do this \u2026 and we have to do it well,\u2019\u201d Gardner recalls of apprehension turning to resolve.<\/p>\n

From then on, the only question was: How?<\/p>\n

Stars Align<\/h2>\n

It was measles that first brought Lauren Gardner and Ensheng Dong together. Dong was among the first recruits Gardner made when she arrived on the Homewood campus in 2019. Dong\u2019s graduate work modeling measles outbreaks was just getting underway when COVID-19 emerged. His skills and Gardner\u2019s research interests quickly aligned.<\/p>\n

\"Photograph
Doctoral student Ensheng Dong’s
expertise was vital to the COVID-19
map that he and Gardner launched
in January 2020.<\/figcaption><\/figure>\n

\u201cEnsheng and I began tracking the earliest cases of COVID and decided to build out a dynamic dataset and make it open for the research community,\u201d Gardner says.<\/p>\n

The timing was fortuitous. In the latter part of 2019, Dong was keeping a close eye on the mysterious new virus emerging in his home country. A native of Taiyuan, a city of five million in northeast central China, Dong had recently completed his master\u2019s degree in geographic information systems at the University of Idaho. While there, he did an internship with the GIS mapping company, Esri, charting health data on maps. Dong\u2019s expertise in mapping health data was not the only head start the team would enjoy. His facility in Mandarin proved an invaluable asset in parsing the spotty, often inscrutable information about the nascent disease seeping out of China.<\/p>\n

\u201cChinese fluency, data science, mapping, and public health experience all merged at just the right time,\u201d Dong says.<\/p>\n

It was a potent brew. But the researchers still lacked a key ingredient: data.<\/p>\n

Putting Data on the Map<\/h2>\n

At this point it was early January 2020. Almost no one was aggregating information about where and how the disease was spreading worldwide. The U.S. had yet to report a single case. The World Health Organization was pushing out updates, but in flat tables in PDF format. Few outside public health fields could understand them, much less internalize their meaning.<\/p>\n

In the void, Gardner and Dong did what engineers do\u2014they began to build a database themselves. From necessity, they went from modelers to aggregators, pulling together any and all sources into a single database. In the earliest days, that meant inputting numbers by hand and updating them periodically throughout the day.<\/p>\n

\u201cEver since, I’ve been wearing two hats, doing two completely parallel jobs of running the data collection, while also using the data in various modeling projects to help improve our understanding of COVID-19,\u201d Gardner says.<\/p>\n

Among the team\u2019s more prescient decisions was the one to plot their data on a map. Dong\u2019s GIS experience and ability to transform data into easy-to-read, easy-to-grasp visual representations made the dashboard resonate in ways that plain numbers never could. \u201cMapping was essential to the dashboard\u2019s popularity,\u201d Gardner says. \u201cThat simple, intuitive, and accessible nature of the dashboard is all Ensheng. He pushed for the mapping.\u201d<\/p>\n

Mapping democratized the data. Suddenly, everyone from inveterate data geeks to the lay public could visualize COVID-19\u2019s reach. The dashboard was deluged. Servers crashed. Dong dropped a course to keep up. Gardner became a household name.<\/p>\n

Scraping By<\/h2>\n

With all attention focused on their data, seemingly small decisions grew in significance. Gardner and Dong chose to plot their numbers on a stark black background with red dots representing the scale of an outbreak\u2014larger dots meant more cases, more deaths. Intense debate about the sizing and color of the dots ensued. Making the dots too large, the researchers worried, would risk overemphasizing the disease\u2019s scale and lead to hopelessness. Undersizing them, on the other hand, might mask COVID-19\u2019s true impact and compromise response efforts.<\/p>\n

Soon, collecting data by hand became overwhelming. To meet those challenges, Gardner and the team partnered with Johns Hopkins Applied Physics Lab<\/a> (APL), Dong\u2019s former employer, Esri, and the Sheridan Libraries to help build out the more extensive data collection infrastructure to crawl the internet and news sites for reports of new cases and deaths and \u201cscrape\u201d relevant numbers, entering them in the database automatically. Some 3,500 data points arrived every half hour.<\/p>\n

While scraping eased the burden of collecting, compositing, and curating data, it raised new concerns about the data\u2019s validity and the potential for double counting. Those worries, in turn, begot new algorithms trained to spot anomalies among the incoming numbers. Much time and innovation went into those validation technologies, Gardner says, but they did not completely erase the team\u2019s worries.<\/p>\n

\u201cI had a nightmare that I had gotten some data from French Guyana wrong,\u201d Dong recalls of the way a sense of duty played on his psyche. \u201cWhen I woke up, I went to my laptop to check that the data was right.\u201d<\/p>\n

\"Lauren
Lauren Gardner’s graduate student team (standing, left to right): Felix Parker, Kristen Nixon, Gardner, Ayoyemi Oladimeji; (seated, left to right): Hongru Du, Andreas Nearchou, Sonia Jindal, Maximilian Marshall, Ensheng Dong, Samee Saiyed, and Naomi Rankin<\/figcaption><\/figure>\n

Insight from Imperfection<\/h2>\n

Despite the team\u2019s Herculean collection efforts, there was no escaping the fact that their numbers would never be perfect. Reporting methods country to country, state to state, and county to county, were too inconsistent, if they were available at all. Data points didn\u2019t always align. A confirmed case to one authority might only be a possible case to another.<\/p>\n

Politics crept in. Some leaders clamored for more testing, while others questioned the value of testing at all. Data became a pi\u00f1ata. It grew so intense that Gardner and her team initially refused federal funding in fear it would compromise credibility. Other than a small grant from the National Science Foundation in mid-2020, the dashboard has received no direct federal funding.<\/p>\n

\u201cEven though we felt like the data collection and sharing should be the government\u2019s responsibility, we were seriously concerned with the ongoing politicization of the pandemic, and believed acting as an independent source for information was critical for retaining public trust,\u201d Gardner recalls.<\/p>\n

Through it all, Gardner remained unbowed. Imperfect and incomplete data were better than none at all. The patterns they revealed proved crucial in anticipating the disease\u2019s next moves, assessing the severity of its impact, and developing public health policies in response.<\/p>\n

\u201cAll we ever claimed is that we accurately reported what was being publicly reported,\u201d Gardner says. She suspects the true number of cases might have been 10 or even 20 times higher than reported. Perfection was the goal, but she knew it was an impossible standard.<\/p>\n

\u201cWhat we are doing is engineering, not epidemiology,\u201d Gardner says. \u201cPostprocessing of the data to smooth the trends out, fill the gaps, and clean up the anomalies is still required to accurately represent the true disease dynamics, and more generally, improve our understanding of COVID-19 risks. But, the availability of data is the necessary first step in this process.\u201d<\/p>\n

Gardner\u2019s faith in the data was rewarded through insights that helped public health decision makers set effective policies. These insights also identified profound inequities inherent in the public health system.<\/p>\n

\u201cIn every crisis there are always disproportionately affected groups,\u201d she says. \u201cData can help expose those truths. Hopefully, there will be more effort to address those kinds of things in the future.\u201d<\/p>\n

Storytelling likewise proved a crucial piece of the dashboard puzzle. In that respect, Blauer\u2019s Coronavirus Resource Center was an invaluable ally. Good data is important, but it needs context. The Coronavirus Resource Center helped frame the nuances in the data in new and deeper ways.<\/p>\n

\u201cWe were in a continual environment of misinformation back then,\u201d Blauer recalls. \u201cThe Coronavirus Resource Center\u2019s storytelling gave a voice to the data, allowed us to assert our expertise and build trust to blunt the force of that misinformation.\u201d<\/p>\n

The CRC\u2019s storytelling explored new meaning in the data and the trends. Using dashboard data, the CRC brought to light that lower-income people and people of color were bearing the brunt of COVID-19’s wrath, for instance. The dashboard became integral to CRC\u2019s influence and vice versa.<\/p>\n

Gardner and Blauer worked very closely and had multiple conversations each day to help support the broader universitywide CRC effort. Gardner focused on leading the team collecting the data and delivering the global map, while a large team at CRC focused on the communication aspects of the data and contextualizing it.<\/p>\n

\u201cLauren has a unique combination of skills,\u201d Blauer says. \u201cShe understands the data, but also that key translational piece to tell us what it all means.\u201d<\/p>\n

\u201cIn every crisis there are always\u00a0disproportionately affected groups.\u00a0Data can help expose those truths.\u00a0Hopefully, there will be more effort\u00a0to address those kinds of things in\u00a0the future.\u201d<\/p>\n

\u2014 Lauren Gardner<\/p><\/blockquote>\n

Life Lessons<\/h2>\n

Looking back, Gardner says the past two-plus years are still a blur. \u201cThe first year was pretty insane the whole time,\u201d she says.<\/p>\n

One data point that remains unreported is that Lauren Gardner did it all while pregnant. In December 2020, she welcomed a new baby and commenced a maternity leave in early 2021. When she came back to work, she took a more strategic role with the data management, and returned to the work she loves most\u2014creating models, exploring the meaning behind the data, and applying the lessons they impart to help support evidence-based policy and decision making.<\/p>\n

Her continuing influence now includes regular consultations with the CDC and the White House to improve their ability to gather data and to effectively communicate what the data mean\u2014a shortcoming the pandemic laid bare. She is also involved in efforts to design and build sustainable infrastructure for future data sharing and modeling that will help us be more prepared for the next pandemic. She is folding into her models many disparate forces influencing infectious disease, including data on climate change, human mobility, policy initiatives, and behavioral and sociodemographic information. That infrastructure does not yet exist, but it is ripe for engineering\u2019s unique perspective and skills.<\/p>\n

As the dust storm of the last two-and-a-half years has settled, what endures for Gardner is an affirmation that, however incomplete or imperfect the data may be, it can still tell us volumes about a deadly disease\u2019s trajectory. And that knowledge saves lives.<\/p>\n

Whatever the future holds, Gardner is certain engineers must play a leading role. They are problem solvers after all, and these large societal challenges are, at their core, engineering problems. These problems deserve the very best the tools the field can offer\u2014mathematics, computer science, data science, and artificial intelligence. Whether the next challenge takes the form of climate change, another pandemic, or some other unexpected crisis, Gardner says viable solutions will always require timely, high-quality, accessible data, presented in a way that\u2019s understandable and actionable, to produce the very best decisions possible.<\/p>\n","protected":false},"excerpt":{"rendered":"

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